Patients Rising Announces Always on Call, New Free Streaming Learning Series for Caregivers

WASHINGTON, DC – Patients Rising, a national patient and caregiver resource and advocacy organization, today announced Always on Call, its new streaming video podcast series for caregivers, by caregivers. The aim of the new show is to connect caregivers with other caregivers and establish a place where those caring for …

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Patient Group Releases New Rare Disease Drug Assessment Standards Aimed At Improving Health Equity

New framework for the evaluation of rare disease therapies prioritizes patient experiences, feedback, and needs WASHINGTON — Patients Rising, a non-profit organization that advocates on behalf of patients with chronic and rare disease, today released its Health Technology Assessment Best Practices for Rare Disease Drugs, a set of standards that outline …

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Patients Rising Names Terry Wilcox Chief Executive Officer, Expands Leadership Team

National Patient Organization Appoints Biopharma Industry, Political Veterans to Leadership WASHINGTON, DC – Patients Rising today announced that the organization’s board of directors elevated Co-Founder Terry Wilcox to Chief Executive Officer.   “Terry has built from the ground up an important patient organization that provides programs and services ranging from education, …

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NEW RESOURCE HUB CONNECTS PATIENTS WITH MEDICAL TRANSPORTATION TOOLS

WASHINGTON – Patients Rising today announced the launch of a new online transportation resource hub for patients and caregivers seeking both emergency and non-emergency medical transportation. The resource center, “A Guide to Medical Transportation” includes tips and resources to understand, locate, and pay for medical transportation services.  Research shows that …

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Innovative Small Businesses Receive National Award for Outstanding Employee Health Program

2022 Health Plan Hero award recognizes businesses with high-value, low-cost health insurance plans for employees. WASHINGTON, DC — Six small businesses from across the country are among the first companies ever to receive a national award for their innovative, outstanding employer-sponsored health program. The companies received the 2022 Health Plan …

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Guidance for a Family with a Newly Diagnosed Cousin

Our Patients Rising’s Patient Helpline navigator program is an online, phone and email support service for patients and caregivers. Our professional patient navigators provide direct support to people and connect them to local, state and national resources, programs, and services. Client situation: A family member called about their cousin who was …

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Guiding a Patient after Hospital Discharge: How to Navigate Rehab and Home Health Aid

Our Patients Rising Concierge navigator program is an online, phone and email support service for patients and caregivers. Our professional patient navigators provide direct support to people and connect them to local, state and national resources, programs, and services. Each week, we highlight patient challenges and how we helped. Client …

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PATIENTS RISING BIOSIMILAR DISCUSSION LAB EXPLORES SOLUTIONS TO ACCELERATE BIOSIMILAR UPTAKE

FOR IMMEDIATE RELEASE Dec. 8, 2021 WASHINGTON — Patients Rising today hosted a discussion lab to examine the economic causes behind the delayed adoption of biosimilars, and policy solutions to increase patient access to other lower-priced alternatives. The entire discussion will remain on the Patients Rising website for patients to …

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Patients Rising Statement on David Mitchell’s Opposition Research “Report”

There are 144 million Americans with chronic disease at stake. Instead of playing Washington D.C. political games with expensive opposition research collected to shame advocacy organizations and their passionate, hard-working patient advocates, David Mitchell and Patients for Affordable Drugs (P4AD) should be focused on doing the real work of getting …

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Patients Rising Statement on H.R.3

FOR IMMEDIATE RELEASE  April 22, 2021 Contact: Summer Johnson Sjohnson@riesterpublicaffairs.com 202.421.9216  PATIENTS RISING STATEMENT ON H.R.3  WASHINGTON, DC — Terry Wilcox, Executive Director of Patients Rising, today  released the following statement in response to today’s introduction of H.R. 3:  “Chronic and rare disease patients are desperately waiting for innovative drugs and  treatments to improve …

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Patients Rising Statement in Support of Medigap Insurance for Patients with End-Stage Renal Disease

FOR IMMEDIATE RELEASE March 8, 2021  Contact: Summer Johnson Sjohnson@riesterpublicaffairs.com202.421.9216 WASHINGTON, DC — Patients Rising, a 100,000 member-organization of patients and caregivers living with chronic illness, today released the following statement in support of the Jack Reynolds Memorial Medigap Expansion Act, a bipartisan bill introduced by Congresswomen Cindy Axne (D-IA) …

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