rare disease

Unbelievable – 2 Weeks to Fill a Prescription

Imagine going to the doctor for refill prescription in the New Year, because your insurance has changed yet again! It’s a prescription you know you will need to take the rest of your life to stay alive and yet every year, it seems the whole justification argument starts over again. …

Read more

You’ll receive updates about new resources, patient stories and insights, advocacy work, and alerts about patient-support events.