Charla Penn

Charla Penn is one of WSW’s health care policy specialists. She works extensively with hospitals, provider associations, pharmaceutical and biotechnology companies, insurers, and non-profits to navigate the transforming health care landscape on issues of reimbursement and access to care.

Jenn McNary

Jenn McNary is a trusted voice in the rare disease community, as a mother, public speaker and fierce advocate.

Anna Legassie

Anna Legassie is the head of strategy and development for a health economics and policy research center driving a research agenda that elevates patient engagement in value assessment in healthcare – ensuring that the barriers to treatments that she’s experienced are addressed on a system level.

Charis Hill

Charis Hill (they/them) is a disability activist, writer, speaker and model living with Axial Spondyloarthritis (axSpA), Ehlers Danlos Syndrome (EDS), Major Depressive Disorder, Anxiety and Post-Traumatic Stress Disorder.

Chelsey Hickman

Chelsey is a skilled government relations professional with more than 20 years of combined experience in the U.S. Senate, the U.S. House of Representatives, and the private sector.

Tamika Felder

Tamika Felder is a patient advocate, educator, mobilizer, author, and the Chief Visionary at Cervivor, a nonprofit dedicated to cervical cancer advocacy and support. 

Stephanie Fischer

As a rare disease patient and stroke survivor, Stephanie Fischer is passionate about explaining public policy so that patients and their families can understand why it matters and feel empowered to engage legislators and regulators.

Brooke Abbott

Brooke is the creator of The Crazy Creole Mommy Chronicles, a brand she created to share her life as a single mother of color living with a chronic condition.

Kris McCabe

Host, Always On Call Video Podcast and Caregiver to Mary, her Grandma In 2017 Kris didn’t know much about Alzheimer’s or caregiving, she just knew she wanted the best life possible for her Grandma. They moved in together and started sharing their love on social media as they navigated this …

Read more

Sarah Furbee

Interim Secretary/Treasurer
Director of Operations & Finance

Jen Roman

Levi Peterson

What really drew me in about Patients Rising, and subsequently made me want to become an Ambassador, was the notion of belonging to this amazing family that inspires each other to achieve greatness and challenges you as an advocate to push the envelope of what’s really possible. Patients Rising is …

Read more

Ella Balasa

Ella Balasa

I am a patient advocate, consultant, writer, and a person living with cystic fibrosis. Since being diagnosed at 18 months old I have experienced countless hospitalizations and multiple surgeries leaving visible scars of the battles I’ve faced. Through my public/motivational speaking I advocate for my condition and for the empowerment …

Read more

You’ll receive updates about new resources, patient stories and insights, advocacy work, and alerts about patient-support events.