CarmenRose Fiallo

I have been an advocate for a youth homeless shelter, a Community Outreach Intern for my local school district, a Community Programs Intern for an NBA team, and am currently a Social Media, Advocacy, and Outreach Community Manager for a small business. The thread that connects all of these positions is my love for community and giving back. I always told myself that whatever work I do, it has to be rewarding. I knew if I wasn’t making an impact that I would burn out quickly. Outside of work I have spent a lot of time volunteering with the United States Association of Blind Athletes, with my local goalball team. It is work like this that fills my cup. It is working to make sure everyone feels included and seen, and most importantly that everyone has access, that has been the most rewarding.

 And here are my social media links:

Instagram – @carmenrosefiallo

Facebook –

LinkedIn –

You’ll receive updates about new resources, patient stories and insights, advocacy work, and alerts about patient-support events.