Stephanie Fischer

As a rare disease patient and stroke survivor, Stephanie Fischer is passionate about explaining public policy so that patients and their families can understand why it matters and feel empowered to engage legislators and regulators. She serves on the Steering Committee of the Pennsylvania Rare Disease Advisory Council as well as the Board of Narcolepsy Network.

Stephanie was recently the Director of Patient and Biopharmaceutical Industry Engagement at the MPN Research Foundation and previously served as the Chief Patient Engagement and Communications Officer at the EveryLife Foundation for Rare Diseases. Prior to that, Stephanie spent more than 10 years focused on health policy communication at the Biotechnology Innovation Organization (BIO) and Pharmaceutical Research and Manufacturers of America (PhRMA). She worked for U.S. Representative Jim Greenwood (PA- 8) for nine years until his retirement in 2004.

You can find her on Twitter and Instagram as @RarePOV.

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