Press Releases

Press Releases

Patient Group Releases New Rare Disease Drug Assessment Standards Aimed At Improving Health Equity

New framework for the evaluation of rare disease therapies prioritizes patient experiences, feedback, and needs WASHINGTON — Patients Rising, a non-profit organization that advocates on behalf of patients with chronic and rare disease, today released its Health Technology Assessment Best Practices for Rare Disease Drugs, a set of standards that outline

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Patients Rising Names Terry Wilcox Chief Executive Officer, Expands Leadership Team

National Patient Organization Appoints Biopharma Industry, Political Veterans to Leadership WASHINGTON, DC – Patients Rising today announced that the organization’s board of directors elevated Co-Founder Terry Wilcox to Chief Executive Officer.   “Terry has built from the ground up an important patient organization that provides programs and services ranging from education,

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NEW RESOURCE HUB CONNECTS PATIENTS WITH MEDICAL TRANSPORTATION TOOLS

WASHINGTON – Patients Rising today announced the launch of a new online transportation resource hub for patients and caregivers seeking both emergency and non-emergency medical transportation. The resource center, “A Guide to Medical Transportation” includes tips and resources to understand, locate, and pay for medical transportation services.  Research shows that

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